Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe:
Building a Roadmap to 2030
Save
the date!
in Brussels
Save
the date!
in Brussels
Alpha-1 Europe Alliance: The voice of Alpha-1 patient organisations in Europe
The Alpha-1 Europe Alliance is set to host a critical event on November 15th, 2024, in Brussels, dedicated to tackling the complex landscape of care and treatment access for individuals affected by Alpha-1 Antitrypsin Deficiency (AATD) across Europe. Titled Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe: Building a Roadmap to 2030, this in-person event is a call to action for people affected by AATD, caregivers, healthcare professionals, advocates, and industry to collectively shape a more equitable future.
The goals of the event are straightforward yet powerful:
- Unify Voices: Bringing together Alpha-1 advocates from across Europe to create a unified front for patient rights and improved care access.
- Define Priorities: Identifying key action areas to guide the Alpha-1 Europe Alliance’s advocacy efforts leading up to 2030.
- Ensure Access: Addressing disparities in treatment and care to achieve fair, consistent access for all people affected by AATD.
Building a Roadmap to 2030
This gathering represents a collaborative opportunity to define and shape the Alpha-1 Europe Alliance’s strategic Roadmap 2025-2030. Attendees will engage in meaningful discussions aimed at identifying priority actions to address current barriers to care and treatment. These discussions will set the foundation for the Alpha-1 Europe Alliance 2025-2030 Roadmap — a plan that aims to remove obstacles, promote research, and advocate for fair access to treatment and care.
Key topics and discussions
The agenda includes a series of dynamic sessions featuring prominent voices from the Alpha-1 community. Topics range from current challenges in accessing treatment to the essential reforms needed to ensure equitable, integrated care. Panel discussions will include patient representatives, healthcare professionals, industry leaders, and policymakers, all working together to forge a clear path forward for advocacy and change.
Participants
Alpha-1 Europe Alliance members
Healthcare professionals specializing in Alpha-1
Researchers, advocates, and policymakers
Industry leaders supporting patient equity
Partners
This event is made possible through the support of partners including Grifols, CSL Behring, Takeda, Kamada, and Mereo BioPharma.
CSL Behring
CSL Behring
Grifols
Grifols
Kamada
Kamada
Mereo
BioPharma
Mereo
BioPharma
This pivotal gathering is a call to action for all stakeholders committed to securing fair treatment access for the Alpha-1 community.
CSL Behring
Grifols
Kamada
Mereo
BioPharma
Participants
Alpha-1 Europe Alliance members
Alpha-1 Europe Alliance members
Healthcare professionals specializing in Alpha-1
Healthcare professionals specializing in Alpha-1
Researchers, advocates, and policymakers
Researchers, advocates, and policymakers
Industry leaders supporting patient equity
Industry leaders supporting patient equity
Partners
This event is made possible through the support of partners including CSL Behring, Grifols, Kamada, and Mereo BioPharma.