Living with Alpha-1
Real stories from the Alpha-1 community across Europe
Alpha-1 Antitrypsin Deficiency (AATD) is a rare inherited condition that can affect the lungs, liver and, in some cases, the skin.
Behind every diagnosis is a person with their own experience, challenges and hopes. Through these videos, people from the Alpha-1 community across Europe share their stories and help raise awareness of what it can mean to live with AATD.
Our community, our stories
Explore video testimonials from people living with AATD and members of the Alpha-1 community across Europe.
Knut Skaar - Norway
Living with AATD and emphysema, Knut speaks about the barriers to treatment in Norway and his work bringing the Nordic Alpha-1 community together.