Transparency and accountability of Alpha-1 Europe Alliance
Alpha-1 Europe Alliance is an independent not-for-profit organisation, registered under Belgian law as an ASBL (Association Sans But Lucratif) under number 1001 288 636. As a patient-led alliance, we are committed to operating with the highest standards of transparency, integrity, and accountability in all our activities.
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Governance and statutes
Our organisational structure, decision-making processes, and membership rules are defined in our official statutes, available for public consultation.
Funding statement
Alpha-1 Europe Alliance follows a strict policy to ensure that all funding relationships respect our independence and mission. We maintain full control over strategic decisions, communications, and policy positions, regardless of funding sources.
Activities reporting
Our Annual Activity Report highlights the projects, advocacy initiatives, and collaborations undertaken each year to advance the Alpha-1 community across Europe.
Our commitment to transparency
As a not-for-profit organisation, our achievements would not be possible without the generous support of our members, partners, and donors. We believe that transparency is essential to maintaining trust — both within the Alpha-1 community and with our external stakeholders.
This section provides access to our financial statements, information on funding sources, and governance documents.
Funding Overview
Our work is funded through a combination of:
- Membership fees and individual donations
- Corporate sponsorships, grants, and project funding
- Other contributions
Financial reporting
Our accounts are independently audited each year and approved by our members during the Annual General Assembly. We publish an annual summary of income and expenditure, along with a list of financial supporters.
Become a partner
Our impact depends on the ongoing support of individuals and organisations who share our vision. By contributing, you help us raise awareness, advocate for better access to treatment, and strengthen the Alpha-1 community across Europe.
Donations of any amount can be made to:
Alpha-1 Europe Alliance asbl
Maison des Associations Internationales
Rue Washington 40
B-1050 Brussels
Legal registration number: 1001 288 636
List of funders
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