Living with Alpha-1
Real stories from the Alpha-1 community across Europe
Alpha-1 Antitrypsin Deficiency (AATD) is a rare inherited condition that can affect the lungs, liver and, in some cases, the skin.
Behind every diagnosis is a person with their own experience, challenges and hopes. Through these videos, people from the Alpha-1 community across Europe share their stories and help raise awareness of what it can mean to live with AATD.
Our community, our stories
Explore video testimonials from people living with AATD and members of the Alpha-1 community across Europe.
Knut Skaar - Norway
Living with AATD and emphysema, Knut speaks about the barriers to treatment in Norway and his work bringing the Nordic Alpha-1 community together.
Stilla Beitz - Austria
Diagnosed with bronchiectasis as part of her Alpha-1 journey, Stilla shares how she faces life with courage, her experience of care in Austria and her work raising awareness of AATD within the patient community.
Alberto García-Casillas - Spain
Seven years after his AATD diagnosis, Alberto discovered the condition was also affecting his liver, and shares why it matters to look beyond the lungs, his message of hope and his call to healthcare professionals to consider both lung and liver health.
Karin Schmid - Switzerland
Karin shares how her family’s experience with AATD inspired her to become actively involved in the Alpha-1 community, and why building connections, raising awareness and bringing people together can make a difference for those living with the condition.