Together for a better life
with alpha-1-antitrypsin deficiency
Find out all about the latest developments, events and initiatives of the Alpha-1 Europe Alliance. Together we are committed to education, research and support for those affected. Stay informed and become part of our dedicated community!
The Alpha-1 Europe Alliance proudly represented our community at Rare Disease Week 2024 (RDW 2024), held from November 18-22 in Brussels. This significant event, organized by EURORDIS-Rare Diseases Europe, served as a vital platform for patient advocates, including Alpha-1 representatives, to engage directly with newly elected Members of the European Parliament (MEPs), European Commission representatives, and members of the European Economic and Social Committee (EESC).
- published on
- Author: alpha1europe
On November 15th, 2024, the Alpha-1 Europe Alliance hosted a pivotal event in Brussels to address disparities in care and treatment access for those affected by Alpha-1 Antitrypsin Deficiency (AATD). The event, titled “Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe: Building a Roadmap to 2030”, brought together patients, caregivers, healthcare professionals, researchers, industry leaders, and policymakers to forge a unified path toward equitable care.
- published on
- Author: alpha1europe
On November 5th, 2024, the Alpha-1 Antitrypsin Deficiency (AATD) Patient Conference was held online, co-hosted by the European Lung Foundation, EARCO, ERN Lung, and the Alpha-1 Europe Alliance. This event aimed to provide individuals living with AATD, their families, caregivers, and healthcare professionals with valuable insights into managing the condition.
- published on
- Author: alpha1europe
The Alpha-1 Europe Alliance proudly represented our community at Rare Disease Week 2024 (RDW 2024), held from November ...
- published on
- Author: alpha1europe
On November 15th, 2024, the Alpha-1 Europe Alliance hosted a pivotal event in Brussels to address disparities in ...
- published on
- Author: alpha1europe
On November 5th, 2024, the Alpha-1 Antitrypsin Deficiency (AATD) Patient Conference was held online, co-hosted by the European ...
- published on
- Author: alpha1europe
On June 24th, 2024, the Alpha-1 Europe Alliance played a vital role at the European Commission’s event in ...
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- Author: alpha1europe
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- Author: alpha1europe
On November 27th, 2023, the Alpha-1 Europe Alliance celebrated a pivotal moment with its inaugural General Assembly in ...
- published on
- Author: alpha1europe
The Alpha-1 Europe Alliance proudly represented our community at Rare Disease Week 2024 (RDW 2024), held from November 18-22 in Brussels. This significant event, organized by EURORDIS-Rare Diseases Europe, served as a vital platform for patient advocates, including Alpha-1 representatives, to engage directly with newly elected Members of the European Parliament (MEPs), European Commission representatives, and members of the European Economic and Social Committee (EESC).
- Published on
- Author: alpha1europe
On November 15th, 2024, the Alpha-1 Europe Alliance hosted a pivotal event in Brussels to address disparities in care and treatment access for those affected by Alpha-1 Antitrypsin Deficiency (AATD). The event, titled “Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe: Building a Roadmap to 2030”, brought together patients, caregivers, healthcare professionals, researchers, industry leaders, and policymakers to forge a unified path toward equitable care.
- Published on
- Author: alpha1europe
On November 5th, 2024, the Alpha-1 Antitrypsin Deficiency (AATD) Patient Conference was held online, co-hosted by the European Lung Foundation, EARCO, ERN Lung, and the Alpha-1 Europe Alliance. This event aimed to provide individuals living with AATD, their families, caregivers, and healthcare professionals with valuable insights into managing the condition.
- Published on
- Author: alpha1europe