Building a Roadmap to 2030: Equity in access to care and treatment

Uniting Voices for Alpha-1 community

Alpha-1 Europe Alliance

Alpha-1 Europe Alliance: The voice of Alpha-1 patient organisations in Europe

On November 15th, 2024, the Alpha-1 Europe Alliance hosted a pivotal event in Brussels to address disparities in care and treatment access for those affected by Alpha-1 Antitrypsin Deficiency (AATD). The event, titled “Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe: Building a Roadmap to 2030”, brought together patients, caregivers, healthcare professionals, researchers, industry leaders, and policymakers to forge a unified path toward equitable care. 

The conference served as a collaborative platform to: 

  • Unify Voices: Strengthen collective advocacy for Alpha-1 patients across Europe. 
  • Define Priorities: Identify key actions for the Alpha-1 Europe Alliance’s policy advocacy agenda for 2025-2030.
  • Ensure Access: Address barriers to treatment and care equity. 

Key discussions and outcomes

Participants engaged in panel discussions, breakout sessions, and strategic planning activities, focusing on:

  • Current challenges in accessing Alpha-1 treatments.
  • Policy reforms are needed to secure fair and consistent access to care.
  • Strategies to overcome inequities and promote research.

 

The event laid the foundation for the Alpha-1 Europe Alliance’s 2025-2030 roadmap, which aims to remove barriers, foster innovation, and advocate for improved care standards.

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Building a Roadmap to 2030: Equity in access to care and treatment

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Building a Roadmap to 2030: Equity in access to care and treatment

Uniting Voices for Alpha-1 community

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