Alpha-1 Europe Alliance: The voice of Alpha-1 patient organisations in Europe
On November 15th, 2024, the Alpha-1 Europe Alliance hosted a pivotal event in Brussels to address disparities in care and treatment access for those affected by Alpha-1 Antitrypsin Deficiency (AATD). The event, titled “Achieving Equity in Access to Treatment for the Alpha-1 Community in Europe: Building a Roadmap to 2030”, brought together patients, caregivers, healthcare professionals, researchers, industry leaders, and policymakers to forge a unified path toward equitable care.
The conference served as a collaborative platform to:
- Unify Voices: Strengthen collective advocacy for Alpha-1 patients across Europe.
- Define Priorities: Identify key actions for the Alpha-1 Europe Alliance’s policy advocacy agenda for 2025-2030.
- Ensure Access: Address barriers to treatment and care equity.
Key discussions and outcomes
Participants engaged in panel discussions, breakout sessions, and strategic planning activities, focusing on:
- Current challenges in accessing Alpha-1 treatments.
- Policy reforms are needed to secure fair and consistent access to care.
- Strategies to overcome inequities and promote research.
The event laid the foundation for the Alpha-1 Europe Alliance’s 2025-2030 roadmap, which aims to remove barriers, foster innovation, and advocate for improved care standards.