Session recordings and resources
Missed the event? Session recordings and additional resources are available online here:
About the event
On November 5th, 2024, the Alpha-1 Antitrypsin Deficiency (AATD) Patient Conference was held online, co-hosted by the European Lung Foundation, EARCO, ERN Lung, and the Alpha-1 Europe Alliance. This event aimed to provide individuals living with AATD, their families, caregivers, and healthcare professionals with valuable insights into managing the condition.
The conference featured active participation from the Alpha-1 Europe Alliance Board members — Fernanda Aspilche Ferro, Karen O’Hara, and Elena Goyanes — who contributed their perspectives and shared personal experiences as patients and caregivers.
“Together, we are stronger and can push for the change that we need."
Fernanda Aspilche Ferro, Presidente of Alpha-1 Euope Alliance
Key sessions included:
- Basics of AATD: An introduction to the condition.
- Life with Alpha-1: Practical strategies for managing the condition.
- Latest Research: Updates and opportunities for patient involvement in clinical trials.
Participants engaged with experts through a live Q&A feature, fostering an informative and interactive dialogue.